Sick baby update for April 28, 2009

For those new to my personal blog, by profession I’m a writer and translator/interpreter. Doing medical interpretation does not bring in big dough, but it does give me the opportunity to help people, something I think I need to do more of in my life.

In my last post, I was somewhat despondent about the baby with born with a birth defect of the liver (biliary atresia). The doctors (who have a tough role to play here; I’m not complaining about them) were delivering bad news at variable timing and in a variety of forms. It seemed the child had a rare genetic disorder that could quite possibly be fatal.

Today, I was called into the hospital again. A very good doctor packaged the information differently, and the situation became much more clear. The baby has poor muscle tone (caused by a developmental problem in the brain) yet good muscle strength. Despite his having a probable brain issue, his cognitive development seems good, as does his development overall. Perhaps the disease will be fatal–perhaps not. Perhaps there is no disease. Perhaps it will get better over time. Who knows?

We went from negativity to ambiguity–a marked improvement in information health.

The baby has a lot of light. He smiled at me, laughing with joy at my smile. He is pulling the world toward him, into his being. I can’t believe that he will give up or leave anytime soon. It just doesn’t feel like his fate.

The baby was discharged from the hospital today. The family intends to go back to Japan in May. Thanks for any prayers you can offer; I do think they have helped immensely thus far!

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